Participation in European Union policy
Time for Lyme participates in the European Union's debates and public consultations.
We are in the EU Transparency Register no. 109714539308-52.
Frédérique Ries, as rapporteur, mentions our group on November 15, 2018 in Strasbourg, during the debate on the European Parliament resolution of 15 November 2018 on Lyme disease (borreliosis) 2018/2774(RSP).
In february 2022, Member of European Parliament Frédérique Ries and Time for Lyme ASBL have jointly drawn 2 texts written questions to the European Commission.
Written question 1: Methods to diagnose Lyme disease (borreliosis) earlier and more effectively
Question PDF
Answer web HTML
Answer PDF
Written question 2: Compliance by Member States with the obligation to report cases of Lyme disease (borreliosis)
Question PDF
Answer web HTML
Answer PDF
In these 2 texts, we ask :
| 1 | new blood tests, in order to improve their reliability, at the beginning and at the end of the infection |
| 2 | follow-up of a group of patients to determine the useful duration of treatment, based on blood tests (even experimental) showing the end of an infection (such as the phage-based test) |
| 3 | to encourage the use of products based on plant extracts as an alternative to antimicrobials |
| 4 | information if Member States report cases of infected persons |
| 5 | which Member States have contacted the European institutions for logistical support aimed at information and awareness-raising campaigns |
| 6 | information on new methods implemented in recent years to detect, diagnose and treat the different forms of Lyme |
The answers are a basis for further dialogue with the European institutions
Time for Lyme EU contributions :
| 14/12/2022 | DG Health / DG Research | Survey | Horizon Europe – interim evaluation / Horizon 2020 programme - Final Evaluation |
| 2/9/2022 | DG Health | Feedback | Blood, tissues and cells for medical treatments & therapies – revised EU rules |
| 2/7/2022 | DG Health / DG Research | Feedback | Interim evaluation of Horizon Europe |
| 2/7/2022 | DG Health / DG Research | Feedback | Horizon 2020 programme - Final Evaluation |
| 13/6/2022 | DG Health | Survey | Stakeholders' Targeted Consultation on EU4Health priorities, strategic orientations and needs |
| 3/6/2022 | DG Health | Survey | Public Consultation on 3rd health programme (2014-2020) - final evaluation |
| 17/5/2022 | International Patient Organisation for Primary Immunodeficiencies | Webinar | PID Forum: Anti-Microbial Resistance and the PID Perspective |
| 5/5/2022 | DG Research | Feedback | A New European Innovation Agenda |
| 14/3/2022 | DG Health | Feedback | Antimicrobial resistance - recommendation for greater action |
| 18/11/2021 | ESCAIDE / ECDC | Webinar | European Antibiotic Awareness Day 2021 |
| 25/10/2021 | DG Health | Survey | Open Public Consultation on the revision of the general pharmaceutical legislation |
| 7/10/2021 | EUPHA / UK Public Health | Webinar | Public Health, Climate Change and Strategic Litigation |
| 28/9/2021 | WHO | Survey | Health impact assessment (HIA) and health assessment (HA) in environmental assessments - Status review 2021 |
| 10/9/2021 | DG Health / EU4Health | Webinar&Intervention | EU4Health Work Programme 2022: targeted stakeholder consultation outcome |
| 8/6/2021 | DG Health EU Health Policy Platform | Webinar | Public hearing on the opinion on mental health of health workforce and other essential workers |
| 25/4/2021 | DG Health | Feedback | Evaluation and revision of the general pharmaceutical legislation |
| 4/4/2021 | European HEpRA | Survey | European Health Emergency Preparedness and Response Authority Public Consultation |
| 25/2/2021 | University of Gothenburg Centre for Person-Centred Care | Webinar&Intervention | A European standard for patient participation in person-centred care |
| 24/1/2021 | DG Health | Survey | Online Public Consultation on the Revision of the EU Legislation on Blood, Tissues and Cells |
| 20/10/2020 | DG Health / EXPH | Webinar&Comments | The organisation of resilient health and social care following the COVID-19 pandemic |
| 15/10/2020 | EUPHA_CHR / IBTN / WHO | Webinar | Chronicdiseases Behavioural insights and public health |
| 23/8/2020 | DG Health / EMA / HMA | Survey | Public consultation on European Medicines Agencies Network Strategy to 2025 |
EU policy contact John Vandeput
